July 11, 2008

Busy

Posted in Uncategorized at 10:55 pm by melissasummers

After cleaning a few corners of the house, we decided that the holiday weekend would be perfect for a yard sale.  We live just off a main road, perfect to snag those traveling North for a long weekend getaway.  Such work! Early start, late close..but between our sale and our neighbor across the street, we managed to block traffic on the road often.

Joker decided that the front yard is his haven.  Even though he escapes the backyard and roams whenever the oppertunity arises, he is a perfect gentlemen in the front yard.  He made sure all visitors were welcomed and would follow closely anyone that briefly touched him..one would think he has been ignored his entire life!

 

 

 

With the sale proceeds, it was time to upgrade my dilapitated shed in the backyard.  I found a great deal on a metal shed, but first the old one needed demolished! What fun!  So Harley and I set out to acclompish the demolition duty!

Harley and I flipped the shed over to reach the roof, and discovered colonies of insects underneath..Sorry to say, we destroyed an entire bug habitat.  My favorite little ones, that posed for me were the yellow and green slugs 🙂

So now I have a demolished shed and the new one is yet to be erected!  Another Wednesday “rest day”.

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April 21, 2008

Home Improvement

Posted in Uncategorized at 10:38 am by melissasummers

I am just astonounded at the rate of recovery on strength and control in my leg.  Maybe these interferons that make me so ill are of benefit after all!  Late last week, when no one was looking, I went up the stairs two at a time..slow and holding on to the rail. No difficulties! Now of course, this was in the morning as afternoons are an entirely different story!

On Saturday, I decided to paint my kitchen. The paint has been sitting in my spare room for a couple of months now. I wear my procrastinator title proudly!   My initial goal was to get the edges and corners cut, as I know how fast my energy can leave my body. Well, that looked odd, and I still  had strength, so I continued on my task.  Now, one cannot go through a day without learning something new…or so my mother has always said.   I now have the pleasure of saying that I learned that if ones balance is a bit screwy..one leaves handprints on freshly wet painted walls!  I have invented an entire new faux painted look!  Home improvement buffs, let the jealousy begin!!!

March 29, 2008

Stairs!

Posted in Uncategorized at 3:03 am by melissasummers

This week I have gone up and down a flight of stairs a few times!  How to explain…the feeling of joy, the feeling of accomplishment, just THE feeling. Yes, my life exists without using stairs, but darn it, that sure made me happy.  I didn’t miss not using the stairs, but that feat left me with an aura, or bubble of happiness surrounding my person.

Of course, the day after first walking the stairs I had a terrible day with my balance!  Weebles wobble but they dont fall down was my slogan that day.  I really know inside that those days I should be using my cane. I keep one in my car, so that there is always one handy wherever I may roam. But, once again, is it pride, or convenience that just makes using a cane at work difficult for me? I have no troubles using it when I am in a store. I know it is a tool to fight the changes and allow me to maintain myself, yet there is that little part of me that sees it as a reflection of my disability. 

But overall, there is physical proof of me regaining my strength!  Yes, to all that have that question in your heads: I DO NOT play on the stairs on the days that my balance is off! My brain has not had that much damage to it!

March 19, 2008

Chuckles at the Doctor’s Office

Posted in Uncategorized at 8:40 pm by melissasummers

Today was the day for my one month follow up visit.   For some reason I was a bit anxious about this visit today, not nervous, just ready for this appointment. Now my appointment was scheduled for the afternoon, which of course means a nice long wait in the appropriately named “Waiting Room”.   Now, the seasoned “waiter” that I am, I nestled down into a seat with my book.  In the seat across from me, was a gentleman, dressed in worn clothing.  His ragged coattails brushed the floor, and his patched trousers were a bit large for his modest frame.  Curiousity now brought my attention from the pages of my book to the aura surrounding this being nearby.  He spoke of being a plasterer and how that occupation is in decline. He shared his story on how lucky he was during his health problems.  He spoke with a smile in his voice and cheer in his spirit, that was infectious to all.  This fellow didn’t need need his white painted smile to show his happiness in life, when his name was called, he rose with a spring in his step, and Chuckles the clown headed off for his appointment.

Another 15 minutes was my turn. Basically, my strength is returning. Yes, it will take some time. But healing is present. There is still delay in reponse from when I tell my leg to “MOVE”. And pivoting on that leg still is not graceful by any means.  Of course, I have never , ever been graceful!! I have started working on my gait on the treadmill this morning, something that I really can only do when I have some stamina. 

Good news is no medication changes are neccessary, something that I had wanted.  So, providing that nothing happens in the near future, I do not have to return to my neurologist until June!

March 15, 2008

Taper Time!

Posted in Uncategorized at 10:09 am by melissasummers

I am so excited! The time has arrived in which my dose of prednisone slowly goes down every couple of days. Soon, I’ll not be awake at 2:30am soaked from a hot flash and starving for omelets, no more wanting 10 meals a day! Now, don’t get me wrong, I enjoy my food, but the drive to eat every two hours is a bit much. I have consumed more in the last week than a months worth of meals!

Next week is my one month follow-up visit with my neurologist. Can it really be that time already since my flare? Sometimes, it’s simply amazing.  There are a few things that I need to prepare for this upcoming visit.  He wishes to discuss changes in my medications, as there was some minor concern over the fact of me having a relapse while on interferon therapy.  Interferon therapy is medication that is used to help slow down the disease progress. It is not a cure, it does not prevent relapses, and it does not always work for everyone. What it can do, is slow down the chance of having a relapse, help limit the damage done to the nerves, and help the nerves heal more quickly. My opinion currently, is I am not ready to change my interferon treatment, but that may change after hearing his view. I have only been on my injections for six months, my body is still adjusting to them.  So, I will explain to my physician my  own reasonings and concerns. In return, he will do the same.  This is an important step in managing your health, communication is the key. No matter the disease, or issue, information is vital.  I am very lucky to have found a physician that listens and weighs my concerns. But yet, if he did not, I would be searching for one that has that quality!

March 11, 2008

Phlebitis

Posted in Uncategorized at 10:58 pm by melissasummers

It is now one week after starting my steroids.  Do I feel better? Are they working?  These questions are difficult to answer , as each “flare” or “relapse” of MS is unique.  My leg has movement, at times…  The strength is limited, but there is some there.  All of this is very promising.  However, Sunday morning,  I noticed a redness going up my forearm, surrounded by a bruise.  Now , this of course is not abnormal after having an IV insertion.  Yet, this was the arm in which Tuesdays IV was placed, so the delay of the reaction concerned me somewhat.

So off to see a doctor! Imagine that! (Someday, if I get bored, I’ll have to count all my office visits)

End result is I have phlebitis in my left arm.  Phlebitis is an inflammation or swelling of the vein caused by the irritation of the IV line. It isn’t painful.  Just a little swollen, red and kind of itchy!   So while I am having hot flashes from the steroids, I have to have a warm compress on my arm.  Luckily this is nothing serious and it will be healed with time.

March 7, 2008

No more IV’s!

Posted in Uncategorized at 11:06 pm by melissasummers

IV Solumedrol is finished!!!  Now I am on steroid pills, this week I have to take them every 4 hours, such fun!  This morning I had 2 breakfasts (oatmeal w/raisins and almonds, chased by a vegetable omelet and hashbrowns)! I have eaten more today, than I have in a week! This should calm down in a few days, at least I hope that happens.  As to judging the effectiveness of this , only time will tell.